CME Breakfast Symposium
Sunday, April 28, 2019
5:30 am - 6:00 am Complimentary Buffet Breakfast
6:00 am - 8:00 am Symposium
Holiday Ballroom 4
401 West Pratt Street
STATEMENT OF NEED/PROGRAM OVERVIEW
Fibrodysplasia ossificans progressiva (FOP) is a rare genetic condition affecting about 1 person in every 1 to 2 million people. FOP is caused by a missense mutation in the ACVR1 gene that triggers excessive heterotopic endochondral ossification. The result is the transformation of soft tissues into bone, forming what is effectively a second skeleton. Given its rarity, FOP may not be familiar to health care providers and diagnosis can be delayed. Further, newborns with FOP often appear normal except for malformed great toes. FOP is often misdiagnosed and overlooked in differential diagnoses that favor more prevalent bone lesions in children. Misdiagnosis of FOP may have significant consequences, such as delay in appropriate care and risk of iatrogenic harm through unwarranted interventions, including biopsy and surgery. This accredited CME symposium is intended to increase awareness of FOP and enhance knowledge and competence of pediatric health care providers who are positioned to recognize and intervene in patients with this devastating disease. World-renowned faculty will provide an update on the pathophysiology of FOP and the latest evidence-based symptomatic management for patients with FOP. Symposium participants will learn about preclinical and clinical findings related to the rapidly evolving area of emerging investigational pharmacotherapies for FOP. Join the leading authorities in this field to discuss the implications of recent research in treating FOP for current and future practice.
This activity is jointly provided by Medical Education Resources and CMEology.
This activity is supported by an educational grant from Clementia Pharmaceuticals Inc.
If you have any questions please contact Beth Goodwin at